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Leukaemia Care
Великобритания
Добавлен 28 апр 2015
40,000 people are diagnosed with a blood cancer in the UK each year. Leukaemia CARE is here for them all, as well as their loved ones whose lives have been touched by the disease. We are committed to providing emotional support, information and advice to anyone affected by a blood cancer and campaign for improved standards of care.
Here you can watch inspirational videos of people telling their story about living with, and beyond, a blood cancer. You can also see videos from some of our amazing fundraisers who are helping us to be there for anyone affected by blood cancer.
Visit www.leukaemiacare.org.uk or call our free helpline on 08088 010 444.
Here you can watch inspirational videos of people telling their story about living with, and beyond, a blood cancer. You can also see videos from some of our amazing fundraisers who are helping us to be there for anyone affected by blood cancer.
Visit www.leukaemiacare.org.uk or call our free helpline on 08088 010 444.
The genetic testing of Acute Myeloid Leukaemia (AML) | Leukaemia Care
After being diagnosed with Acute Myeloid Leukaemia (AML) your doctor may mention the possibility of Genetic testing? But what does this actually involve and what does could be the impact for you and your family ?
0:00 What is Genetic Testing?
0:18 What is the science behind genetic testing?
0:45 What does genetic testing involve?
0:55 What might the results of genetic testing mean for me?
1:17 How do they test for inherited genetic changes?
1:28 What could these results mean for my family ?
1:52 Where can I find more information?
For further information or to talk to our nurse about this visit www.leukaemiacare.org.uk or call our freephone helpline on 08088 010 444.
Financial support was provid...
0:00 What is Genetic Testing?
0:18 What is the science behind genetic testing?
0:45 What does genetic testing involve?
0:55 What might the results of genetic testing mean for me?
1:17 How do they test for inherited genetic changes?
1:28 What could these results mean for my family ?
1:52 Where can I find more information?
For further information or to talk to our nurse about this visit www.leukaemiacare.org.uk or call our freephone helpline on 08088 010 444.
Financial support was provid...
Просмотров: 233
Видео
Leukaemia Care - BBC Lifeline Appeal - How we support leukaemia patients
Просмотров 2093 месяца назад
In February 2024, we launched our BBC Lifeline appeal. Watch it today to find out more about how we support leukaemia patients. About Leukaemia Care Leukaemia Care is the UK’s leading leukaemia charity providing information, advice and support to anyone who has been affected by a leukaemia diagnosis, from the patient themselves to a family member or friend. Every day 27 people are diagnosed wit...
Life after treatment - The psychological challenges and the support available to me? WEBINAR
Просмотров 1645 месяцев назад
Our webinar recorded on Monday 29th January where Clinical Psychologist, Dr. Mia Foxhall, discussed the emotional and psychological challenges that some leukaemia patients may face during treatment, recovery, and beyond. We discussed a variety of coping mechanisms and look at what support is available.
"Why am I ill so much? | Frequent infections | A Symptom Spotlight
Просмотров 2837 месяцев назад
"Why am I ill so much ?", "Why am I poorly so often?", "Why won't this infection go away?" These are questions you might find yourself asking if you're experiencing frequent or persistent infections that are abnormal to you. Frequent infections can be a sign of leukaemia. However, patients can often mistake their symptoms to be those of the flu or other infections, and therefore initially dismi...
Understanding Chronic Myeloid Leukaemia (CML) - WEBINAR
Просмотров 6609 месяцев назад
Leukaemia Care are hosting this patient information webinar to explain chronic myeloid leukaemia (CML.) What is CML? How is the disease diagnosed, managed and treated today? What can help you to make sense of your blood results? Exploring what support and care is available to help you and your family manage challenges you may experience along your life pathway. We will be joined by: Dr Guy Hann...
Understanding Acute Lymphoblastic Leukaemia (ALL) - WEBINAR
Просмотров 2859 месяцев назад
Leukaemia Care are hosting this patient information webinar to explain acute lymphoblastic leukaemia. What is ALL? How are different types diagnosed and treated today? How can ALL and treatment affect you? What support and care is available to help you and your family manage challenges? We will be joined by: Dr Richard Kelly, Consultant Haematologist and Catherine Langton, Lead Myeloid Clinical...
Understanding Myeloproliferative Neoplasms WEBINAR
Просмотров 2689 месяцев назад
This webinar ‘Understanding Myeloproliferative Neoplasms (MPN)’ will be covering talking the many aspects of MPNs, including what different conditions make up this group, how they are diagnosed and managed as well as the different treatment options available. The webinar will also focus on what a patient can expect when living with an MPN and what support and care is available to help you and y...
Women's Health Webinar
Просмотров 20910 месяцев назад
This webinar will provide an overview of treatment induced menopause and women’s health in relation to a blood cancer diagnosis. What are the physical and psychological symptoms of menopause and how can these be managed? Who can support me with women’s health issues and how are these diagnosed? We will also discuss support, resources and techniques that can help you to build self-esteem and con...
CLL and living well on "Watch and Wait" webinar
Просмотров 38010 месяцев назад
The aim of this webinar is to explore the psychological, general health and wellbeing challenges that you may encounter when living on active monitoring (watch and wait). During this session we discuss what to look out for and strategies that can make a difference to improve your day to day quality of life and equip you for the future. What information and support is available to help live well...
Understanding Hairy Cell Leukaemia (HCL) WEBINAR
Просмотров 1,6 тыс.10 месяцев назад
What is Hairy Cell Leukaemia? How is the disease diagnosed, managed and treated today? What can a patient expect along their life pathway with the disease and what support and care is available to help you and your family manage challenges to live well and as near a normal life as is possible? We are joined by: Dr Dima El - Sharkawi, Consultant Haematologist and Donna Picton-Owen CNS from The R...
Understanding active monitoring (Watch and Wait) in CLL webinar
Просмотров 63711 месяцев назад
The overall aim of this webinar is to inform patients with CLL to be better able to live well with active monitoring also known as ‘watch and wait’. The majority of people diagnosed with CLL will have to live with active monitoring before they are treated, one third of those diagnosed may never need to be treated. Living with the uncertainties, challenges and opportunities active monitoring pre...
London Marathon 2023 with Leukaemia Care
Просмотров 160Год назад
Here's a look at some of the runners that took the streets of London to fundraise for Leukaemia Care in April 2023. If running for Leukaemia Care is something you might be interested in for a future event, head on over to www.leukaemiacare.org.uk for more information.
Leukaemia Care's Wellbeing Workshop
Просмотров 127Год назад
Are you recuperating after having a stressful day? Would you like some help learning how to cope with this stress? Watch our online wellbeing workshop and learn a variety of practices that can help you manage stress. This group is suitable to people of all physical abilities. Please wear comfortable clothing, and ensure you have a comfortable chair to sit on.
The latest advancements in the treatment of Myeloproliferative Neoplasms (MPNs) - WEBINAR
Просмотров 743Год назад
The latest advancements in the treatment of Myeloproliferative Neoplasms (MPNs) - WEBINAR
The latest advancements in the treatment of Acute Lymphoblastic Leukaemia (ALL) - WEBINAR
Просмотров 860Год назад
The latest advancements in the treatment of Acute Lymphoblastic Leukaemia (ALL) - WEBINAR
The latest advancements in the treatment of Chronic Myeloid Leukaemia (CML) - WEBINAR
Просмотров 3,3 тыс.Год назад
The latest advancements in the treatment of Chronic Myeloid Leukaemia (CML) - WEBINAR
The latest advancements in the treatment of chronic lymphocytic leukaemia (CLL) - WEBINAR
Просмотров 3,3 тыс.Год назад
The latest advancements in the treatment of chronic lymphocytic leukaemia (CLL) - WEBINAR
The latest advancements in the treatment of acute myeloid leukaemia (AML) WEBINAR
Просмотров 1,9 тыс.Год назад
The latest advancements in the treatment of acute myeloid leukaemia (AML) WEBINAR
Coping with late effects of acute leukaemia treatment- WEBINAR
Просмотров 312Год назад
Coping with late effects of acute leukaemia treatment- WEBINAR
We're calling for more financial support for leukaemia patients | #LeukaemiaLevy
Просмотров 209Год назад
We're calling for more financial support for leukaemia patients | #LeukaemiaLevy
Why should I prepare for the future and write a Will? WEBINAR
Просмотров 105Год назад
Why should I prepare for the future and write a Will? WEBINAR
6 things you need to know about swollen lymph nodes (or swollen glands) #SpotLeukaemia
Просмотров 83 тыс.Год назад
6 things you need to know about swollen lymph nodes (or swollen glands) #SpotLeukaemia
Loneliness and leukaemia, what can help me?
Просмотров 408Год назад
Loneliness and leukaemia, what can help me?
I have blood cancer, what are my employment rights? | Online Webinar | Leukaemia Care
Просмотров 404Год назад
I have blood cancer, what are my employment rights? | Online Webinar | Leukaemia Care
What can help me manage side effects during a stem cell transplant? WEBINAR
Просмотров 1,1 тыс.Год назад
What can help me manage side effects during a stem cell transplant? WEBINAR
What is involved with a bone marrow transplant (BMT)? WEBINAR
Просмотров 639Год назад
What is involved with a bone marrow transplant (BMT)? WEBINAR
How do I decide between a fixed treatment duration versus Continuous therapy for CLL? WEBINAR
Просмотров 391Год назад
How do I decide between a fixed treatment duration versus Continuous therapy for CLL? WEBINAR
Running the London Marathon | Leukaemia Care
Просмотров 755Год назад
Running the London Marathon | Leukaemia Care
I got stage 4 lymphoma in my bottom bicep
They don't teach you in school that you need to fight for your life, even if you don't know you need too. Doctor will tell you your fine, young, see you next year. You have to be smart, and figure it out yourself. One dismissive doctor could be the only chance someone had.
Is this dude a robot?
This makes me uncomfortable,
I don’t know wtf im suppose to be looking for like someone specifically point out where they are cmon now
Sack of ai robots wtf
Good info but PLEASE stick with a human narrator and real person, not AI
I am kenyan. My mother was diagnosed of cml in 2018. Continues with medication upto today
I hate when doctors just assume stuff. If you're a doctor and I visit you, I want you to run tests. I could go to anyone for assumptions.
Im undergoing the treatment 2 cycles of mtx left. I want to know does alcohol have anything to do with pre b all. After completing chemotherapy
Does anybody get Swollen glands on their neck when you drink milk? I’ve been researching about this because when I drink milk, my glands pop up and stay for a few days and don’t go away.
Could be an allergy to cows milk
What if they were hurting and stop hurting
Idk what's wrong with my body😭 I have movable swollen lymph nodes on my jawline for more than 3 years and I'm completely fine. They don't hurt at all and they move very easily. WHAT THE HELL💀
Same here! 😭 How big r yur swollen lymph???
@@kuplangphom9984 they're not too big but they're not small
I’ve had the same thing for a few months now I’m going to go get it checked out asap
@@18chucknorrisjr what did the docters say
@@18chucknorrisjr omg can you please tell me what did the doctor tell you after you go there??
this is the second video I've seen where they dont' mention the bone marrow test - which I had within a week of being diagnosed at a hospital as having "some kind of cancer". The hospital dr didn't say what kind because he couldn't have possibly known what kind. I don't understand English and Australian medicine. And waiting two weeks for a hospital contact? Why not immediately go to an oncologist? Absurd.
Hi I am in Perth and diagnosed with CML...How are you?
Shngp
Love this man, a great friend for over 40 years. His courage and sense of humour in unbelievably challenging times is an inspiration that will always stay with me. Goodbye, Martin, and thank you for being in my life.
Are you still doing well, John Walsh?
Is he AL
Blood cancer disease gunamagA
I came to visit Bangkok ,doctor found my both sides neck nodes are enlarged! But left one is more bigger… here the ENT specialist told me to take antibiotics for 7days and if it will not shrink then I have to go for biopsy! I have chronic tonsillitis! I am very much tensed 😖
bro do not worry i have in my right neck but its pain less n m worried aswell
@@ronikjlama2437 what is size of your one? Did you get an usg already? And how long have you been noticed ? My one is more than 1yr
You need better doctors there.
Mine are quite big in my neck and they’ve been there months 😬
same but I have a friend who studies cancer and she said don't worry about it
@@HunterPlayz11 Why so ? Did she explain why ?
@@miami-dade3058 same here been 2 months no symptom
Are you still here with us?
I miss you grandad..
Me too, 2015. Cladribine and Retuximab. Remission. You'll get well. I'll pray for you. 😊
Gotta love how horrible doctors have become.
No bone marrow biopsy to check whether you have mutations and confirm the diagnosis ?
I was diagnosed in 2015. I still go in for blood tests.
creeeepy
Nice AI presenter
hi my daughter is 27 and after 15 months she still suffers so badly with bone pain that she spends days and weeks in agony crying and in bed , the pain team after waiting 3 moths to see them have now discharged her saying nothing they can do has the opiates ,pregabilin and katemine dont work for her , they stopped the katemine and now reducing the opiates and the pregabilin its heart breaking watching her cry all day every day . also her mental health has been effected and wishes she never got through the initial treatment has she believes her life is over . help please someone must have ideas. treatment wise or surgery. Reply
hi my daughter is 27 and after 15 months she still suffers so badly with bone pain that she spends days and weeks in agony crying and in bed , the pain team after waiting 3 moths to see them have now discharged her saying nothing they can do has the opiates ,pregabilin and katemine dont work for her , they stopped the katemine and now reducing the opiates and the pregabilin its heart breaking watching her cry all day every day . also her mental health has been effected and wishes she never got through the initial treatment has she believes her life is over . help please someone must have ideas. treatment wise or surgery. Reply
hi my daughter is 27 and after 15 months she still suffers so badly with bone pain that she spends days and weeks in agony crying and in bed , the pain team after waiting 3 moths to see them have now discharged her saying nothing they can do has the opiates ,pregabilin and katemine dont work for her , they stopped the katemine and now reducing the opiates and the pregabilin its heart breaking watching her cry all day every day . also her mental health has been effected and wishes she never got through the initial treatment has she believes her life is over . help please someone must have ideas. treatment wise or surgery.
How r u
Hi im lloyd. I was diagnosed with cml 2 weeks ago. i was devastated at first, but now just have to admit that this is what i have and i have to live with it just like the rest of you. They had to take a blood sample twice a week. i hope in the near future, they will have cure for all cancer.
My nephew was diagnosed in November soon after turning 51 with AML and TP53. I hope he can be part of a trial. He was diagnosed at Emery in Atlanta. He spends as much time in the hospital as he does at home. He has been told he has 6 months to a year to live. We hope and pray for a breakthrough and a miracle. I don’t know what else to say. There doesn’t seem to be much hope given in the information I have found. It is a helpless feeling. Just praying that God will make a way.
Please explain side effects & how to overcome these side effects of imatinib & dasatinib?
My sister is having heavy period flow and she is having her periods for 18 days continuous each month for past 2 months , her gums also bleed very often , she has quite some bruises on both her legs Can this be a sign Please let me know ASAP
this is AI generated
Know more on Lymph Nodes and how it is evaluated by Dr. Anil Kamath, Surgical Oncologist - ruclips.net/video/hG-u6bmCebY/видео.htmlsi=lw_WJLYmBu8a0Srq
Thank you. Left side face between ear and jaw. No pain. About 3 inches long by half wide. Lay down for hour it shrank but returned when on feet. Not sick or anything . . Just weird.. doctor calling soon 🤦
what was the result basicallt have something exactly like that?
@@Mik3B doctor said it was ducked side face sometimes fills up with fluid. Said it will go and it did thank god.
Can u make a video in indian language pls
I am getting sick and tired of being fobbed off by GPs. I too started losing weight and had night sweats which I thought was just a long lingering effect of menopause. I'm a keen powerlifter and I suddenly became aware that doing my regular workout was getting hard. I started failing lifts which I previously did with ease. Walking to the shops and going home with a small bag of shopping entailed a rest on a couple of garden walls, I was so tired and out of breath. Absolutely ridiculous! I instinctively knew something wasn't right and telephoned GP. No appointments available (of course!) and I didn't have "shortness of breath" snapped the receptionist, "because you can still talk" but she made an appointment for me to see an emergency overflow GP practice in 2 days. Saw the doctor who thought I had menopause symptoms! (I was 65 at the time!) and ordered a full blood test. I mean really! Where do they get these people! Had to wait 5 days for a phlebotomy appointment by which time I was getting weaker. Did the blood test and was telephoned at 8am the next morning by our local teaching hospital and was told to come in NOW, no ifs or buts. I knew what was coming when the Macmillan nurse escorted me to the consultant haematologist's room, I had cancer. It was there that they admitted me to isolation, had bone marrow biopsies, heart scans, x-rays, a whole hoopla of testing and was told I had CML in blast crisis. My feet hardly touched the ground as they started the first round of 5 days of chemo and yes it was gruelling. I picked up a fungal infection in my lungs and got admitted to ICU. 7 weeks in hospital isolation and they are still treating the fungal infection and cannot proceed until it's killed off. I'm currently at home on targeted tablet therapy (was imatinib and then changed to the stronger dasatinib to really keep a foot on the white blood cells getting out of control). So now I'm in a state of Chronic myeloid leukaemia but stable. Apparently my "type" has been closely studied in the labs and they have even found a suitable donor which is my only chance of a cure. My hospital doctors and specialist nurse are just great. Sorry this is so long but if you FEEL something is not right, stand your ground and insist a full blood screen.
Pray you will get fully recovered very soon🙏🙏
Robot
UNEXPLAINED bruising. Not random.
Thank you so much for this webinar , I have a very close young family member of mine who has been diagnosed with ALL B cell and is being treated at the moment , You guys are amazing in your research and dedication to helping develop a cure for this dedication , I pray and hope so many of God's blessings come to you all , your are such amazing individuals 🙏🙏
I've been told that heavy alcoholiem can also cause persistent lymph nodes as well.
Mine use to be crazy before I quit drinking (again)😂
Thank you for sharing 🙏💫💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞💞
❤
Excellent presentation.Thank you so much.